Emily PlayingI would like to take a minute to tell you about Emily. Originally from Sandwich, MA, she is a two year old residing in Mashpee. She was born with a rare genetic disorder known as Beckwith Weidemen Syndrome. The Syndrome can have a range of complications. Emily unfortunately has several of them. She suffers from Hypertrophic Cardiomyopathy (high blood pressure). She also has Polycystic Kidney Disease, which ensures she will need a kidney transplant. Emily also has Hyperinsulinism; she creates too much insulin, which causes low blood sugars. Children with Beckwith Weidemen are also at greater risks to develop certain types of cancer.

In January of 2005, Emily was diagnosed with Rhabdomyosarcoma, a cancerous tumor of the face and neck. After multiple surgeries and chemotherapy treatment, it was decided that radiation would be the next move. However a few weeks into the treatment Emily caught a virus known as Para Influenza Type 3. The virus caused her lungs to shut down and she spent a month breathing through a respirator in the intensive care unit. She is now receiving medication and most of her nutrients through a feeding tube.

Emily and her Mom, Krissy Share a Special Moment 

Emily, Madison and Taylor

Emily with big sisters Madison  (4) and Taylor (6)

Donations to help Emily can be sent directly to the following address:

The Family of Emily Elizabeth Sheppard
c/o The Community Bank
337 Cotuit Road
Sandwich, MA  02563

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